You may notice that I have gotten rid of the .5 for the day’s post. That seemed important in the early going and now the medical team is focused on going forward by a simple day numbering scheme.
The other reason is that I have been discharged from the hospital and spent the day in our apartment today, that is except for the 3-hours in clinic this morning.
Big picture I seem to be doing as expected. I am very fatigued although I am told this is because I am more active no longer sequestered to my hospital room. As an example, if you have been to the Fred Hutch clinic you know it stands at the top of pretty steep hill. While I was in prep mode for the transplant I would always walk up the hill. After the transplant I am anemic so no real stamina. This morning we took an Uber up the hill. And after the appointment we walked down back to our apartment. The walk is a bit less than a 1/2 mile. Doesn’t sound like much however it was a big emotional motivator.
Going forward we will have clinic visits every day for IV supplements of Magnesium and Potassium. The next big day will be day +28 when I will undergo bone marrow biopsies to indicate how deeply rooted the new cells are. Today, the scoreboard continues to look good.
As Dorothy said in the Wizard of Oz, there is no place like home.
Larry and Sharon