A rather long day at the clinic today. All good. We met with the nutritionist who is helping to guide me to include the correct sources of nutrients. Sharon is my best expert on this and it was very apparent during the meeting that she is doing an exceptional job making sure I am eating, and keeping down, what I eat. Since our couple of bad days over the weekend things seem to be going smoother. My weight seems stable although I am retaining some water in my ankles so that may skew things a bit.

We next met with our attending and the clinical team. They all agreed I am doing great for my timeline. I like to hear that although that does not exactly take away my fatigue and general sense of malaise. Today we learned that the next big set of tests will be a bone marrow biopsy on day +28 and on that day a series of blood tests called “chimerism”. The purpose of this will be to tell us of the blood cells floating around what percentage are mine and what percentage are my brothers. The doc and I made a bet as to the outcome. I bet 70/30 my brother/me. He thought the number would be higher 85/15 my brother/me. Of course the less of cells there are left of mine the better. More on this to come as we gain a better understanding.

The last stop was for my 3-hours of hydration and electrolyte replacement, then a stop at the pharmacy to pick up a drug I will take for the next 100-200 days to keep a CMV infection I picked up, who knows when. As I am now on immunosuppressants, things like this could rear their ugly head and we would not want that.

No blood counts today so I can’t add to my scoreboard. Then I walked home and had a lovely nutritious dinner prepared by Sharon. Hope you are well.

Larry and Sharon