Day +41

Another day gone by. I was able to walk up the hill today for my appointment. That is getting more regular now. While in the clinic I had an appointment with a Palliative Care Physician. I have these once a week. They try to give suggestions on how to lessen the side effects of transplant. A few weeks ago I was talking about how often I have to get up at night to relieve my bladder. I call it old man’s pee disease. So here is too much information as the suggestion was to keep a urinal at my bedside so I don’t have to walk the hall to the potty. It actually works pretty well and gets me back to sleep.

At another visit, as I think I have mentioned, they said to beat my fatigue I ought to go out for walks. Although it seems counterintuitive, as I have been reporting I walk every day. At the visit today I reported I am walking 2-3 miles/day. The doc was amazed and said she had not other transplant patients who were that active at the stage I am at. I guess that’s just how I roll. Now if I can get my hearing back, I will be much less frustrated. Sharon and I have figured the compromise on our screen time as I have been able to enable closed captions on most of the shows we watch. It works.

Tomorrow we meet with the nutritionist and of course I receive my IV therapy. Hope your summer is going well.

Larry and Sharon