Day +42

Kind of a mixed bag today. My scorecard is looking good. Nothing to complain about in my blood counts. As I have been reporting WBC, HCT, Platelets, and ANC counts all holding steady today.

What is not so great on the scorecard is my O2 Sat. I had two clinic appointments today, morning and afternoon. My O2 Sats were in the high 80’s to low 90’s. There is concern and today I brought home an inspirometer, the kind a person might get after a surgery to open the lungs. I will use that and in conjunction with the antibiotic I am taking hopefully this will resolve.

On the good side of the scorecard is the fact that for both the clinic visits today I walked up the hill and back down. So I got my 2-miles of walking in with a couple of hill challenges.

As I think more is talked about in the mental health arena, I will say that I am a bit frustrated and worried. I know I am not yet 1/2 way to my going home endpoint, and certainly not even close to the year I was told it would take to recover. Having said that my hearing loss is troubling me. And before we arrived here, from my CAR T therapy in 2019 I knew my lungs could be problematic. As I said the team here is overseeing every aspect of my recovery and I have a lot of faith in them. Sharon is working hard to support me and given my fatigue I cannot chip in to help her. We have cut down on our daily conversations because frankly, I just can’t hear. This is no easy road and I am in awe of all who have come before me and survived and thrived thereafter. I plan to do the same.

Larry and Sharon