A typical day. A visit to the clinic for a dressing change to my chest port. Our usual walk, a nap, and time spent reading the information on follow up care when we return home. There are so many warnings in the documents that I think if I read all of them ahead of time I might not have gone through this. Actually not. We were down to no other options so of course we had the transplant. Much of the documents spend time on chronic graft vs host disease (cGVHD). And the cautions we should take when home. Many of these I am aware based on the close to 100 days since the transplant. Meaning fatigue, organ system problems and the schedule of follow up care. One interesting statistic I read is that Fred Hutch at any one time is following 6,000 patients who over the years have had bone marrow transplant here. I will be happy to be added to that roster.

Tomorrow is a day with many planned visits. I will start in the oral health clinic to be cleared for discharge as well as the meds needed for my osteoporosis. I learned today in my reading that teeth are affected and need close follow up. After the oral health visit will be lab tests and then a visit with my clinical team. More to come tomorrow.

Larry and Sharon