After 2-weeks of testing and inspecting every part of me, today we were cleared for the bone marrow transplant and signed the consent documents.
We are now at T-7 days to transplant. The fun begins tomorrow as I will have a IV catheter, referred to as a Hickman, inserted into my chest. This will become my constant companion for the next 2-3 months, longer If needed.
At T-5, this coming Friday, I begin four consecutive days of chemotherapy. T-1, next Tuesday, total body radiation will be administered.
On launch day, referred to as day zero, my brother will have his stem cells harvested in Chicago.
When the cells are ready, they will be immediately passed off to a courier who will be personally responsible as they travel cross country to Seattle. I will be admitted to the hospital on that day and receive the cells, most likely very late at night as soon as they are ready.
After the infusion, I will stay in the hospital for 2-3 weeks for monitoring and support of the many side effects we have been told about.
This would not be possible if not for two things. The absolutely wonderful care I have received here at Fred Hutch, including the push to get me the compassionate use trial drug that saved the day, as well as my brother who is offering his cells to save and prolong my life. It is said that the highest form of charity is an anonymous donation where the recipient does not know where the donation came from and the donor needs no personal public recognition.
I am humbled to know my donor, and although he is not looking for it, he deserves the acknowledgement and deepest gratitude for this selfless act.
I will continue to post daily updates to our blog and will from time to time send you messages via email.
Sharon and I are deeply touched by the support, caring, and prayers that have come our way. We feel it here.
We hope this message finds you well.
Sincerely,
Larry and Sharon
