Day +89 / 11 bottles

A quiet and cool day here in the Pacific Northwest. No clinic visit. A nice outdoor walk, better in cooler conditions. Last night was the first night I slept without oxygen. Since I wake up on a regular basis to empty my bladder, I checked my O2 saturation and all stayed above the level that is supposed to be my baseline. I am hoping that means I am done with supplemental oxygen.

Tomorrow I have a clinic visit for a dressing change for my central line catheter and then a Covid vaccine. The vaccine I will receive is the last one released and in a month I will receive the new one. I have mentioned my immune system is like a newborn baby. Obviously I need Covid protection. Of interest is that after my CAR T therapies, I did not respond to the vaccine based on how those treatments affected my ability to respond to vaccines or viruses. Through research supported by LLS, we know that people who undergo bone marrow transplant do, in fact, respond to the vaccine. At any rate, I will still need to live a bubbled up lifestyle.

Lastly we did make airline reservations to return home on Saturday September 16. Let the packing begin.

Larry and Sharon