We met with our doctor today who provided positive news in that the new medication we are attempting to receive has been approved by the drug company, Lilly Oncology. Next steps are for approval of the paperwork, meaning consent and protocol documents. The hope is that the medication arrives here within the next week to ten days. With Pirtroburtinib in hand we will be given the green light to return home to Sacramento.

I will be monitored at home and will need to travel to Seattle on a monthly basis to pick up the medication. Since this drug is not FDA approved, no pharmacies will have access to it. If this works, the travel is a small price to pay.

The last bit of the conversation today revolved around whether or not the bone marrow transplant will be attempted again. Should the new medication bring me to a complete remission we could be back in Seattle in the Spring.

In the meantime I have also been advised to live as we have in a Covid bubble. Limiting our exposure because I am still, and will be, immunocompromised, and any setback would affect our chances of this cure.

Thanks again for all the support we have been receiving.

Larry and Sharon